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A Spiteful and Vindictive Agenda

Will Hutton in today's Observer :http://www.guardian.co.uk/commentisfree/2011/jun/26/will-hutton-media-unfair-reporting?commentpage=last#end-of-comments has written an excellent piece on how a "spiteful vindictive" agenda is dominating our media- he talks for example about the " vilification of disabled people during the pursuit of welfare scroungers".


Anyway I was moved to make the response below :
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Years of caring full time for my chronically ill and disabled wife, who receives no treatment whatsoever for her neurological disease : Myalgic Encephalomyelitis (ME) , have given me such  profound insights  into who wields the  real power in the UK.


The fact that a small school of UK psychiatrists can so dominate the media , to the extent that NICE, GPs ,  Neurologists , the public, the Royal Colleges, the Medical Research Council, subscribe totally  to their hideously wrong ideology, based on nothing more than personal opinion, that ME is all in the mind, is testament to the control that corporations, in particular the Medical Insurance Industry,  now exercises over Government.


Martin Walker's new book : Dirty Medicine, the Handbook, makes depressing reading for someone in my position, struggling to cope with my wife's never-ending pain and raging symptoms which have never eased up for a single moment, not once  in these last 18 years. The course of her disease has exactly coincided with the rise of  those corporate science -backed "quack busters" : Sense About Science and the Science Media Centre.


The galling lies and nonsense these front organizations  propagate about ME,
the lengths they go to attack and destroy anyone who tries to make a biomedical breakthrough, their almost total hold over the press, the articles they continually publish, especially in the BMJ- there is a particularly vicious one this week, makes it almost inevitable that we will have to struggle without treatment or hope of a cure - because the only "official" research is psychiatric, for another two decades.


Our only hope is that  truth cannot be suppressed for ever  and one day the UK will come to senses and recognize ME , five times bigger than AIDS, for the epidemic, killer disease that it is - and do the biomedical research that is so urgent.


In the meantime how many more lives will be wasted, will be lost  ? Like the Bankers, Science  is busy destroying society; all   in the interests of their corporate masters.

Linda's response to the BMJ

  1. Who are the real victims ?

    Because a few people are behaving inappropriately, it does not mean that the real physical needs of people with neurological ME are not a genuine issue.
    It does not mean there are not valid issues about PACE that are right to be raised.
    It does not make the findings of the PACE Trial any more valid for people with ME - and it certainly does not negate the ongoing biomedical neglect of patients, which is directly a result of the confusion that the psychiatric lobby has created , regarding the proper treatment of ME, a WHO-classified , serious neurological disease.
    Nor does it make right the implication that ME is a mental health condition requiring therapy as treatment.
    Peter White , the lead investigator of the PACE Trial, had to confirm, in a letter to the Lancet, that the PACE Trial was not studying ME (http://www.meactionuk.org.uk/Hoopers-initial-response-to-PDW- letter.htm). So where is the justification for offering these treatments for people with ME ? I can see none.
    Yet CBT and GET are still being recommended as gold standard treatments for ME ,by NICE, quite wrongly it appears then, as patients have always maintained.
    All the time that appropriate tests are proscribed for people with ME it will be difficult for patients to prove the physical causes of ME or alleviate their terrible physical suffering.
    Let us not forget who the ultimate victims in this story are . They are not the creators of the flawed psychosocial services that charade as ME services in this country, for these are the very people with the power to influence the whole of the medical profession, the Government , the MRC and the Media.
    They are the patients like myself who are suffering for decades without appropriate biomedical investigations and a genuine ME service that tries to look at and then treat the disease process .
    And all because of a quite inappropriate focus on therapy.
    Surely it is time for is the BMJ to start raising some serious medical issues about the most isolated, negated and neglected, severely physically ill patients in the UK and stop publishing a biased psychiatric representation of ME ?
    Competing interests: None declared
    Submit rapid response

Voices From The Shadows

Voices From the Shadows

This film is probably the most powerful ME film you will ever see : I am certain of that.

Watch , weep and speak-out about the injustice that you and the people you know are experiencing daily. Things must change. THE TIME IS NOW.

This film will shock, horrify, enlighten and move you to tears; it highlights the psychiatric abuse of people with ME, as no other film has ever done.

The trailer has just been released on Facebook :

https://www.facebook.com/pages/Voices-from-the-Shadows/113252708761601?sk=wall

Breakthrough Prayer 9pm BST Saturday 4th June 2011

June 4th 2011
We pray tonight that we are heard, that our needs are seen and that Truth of the reality of Myalgic Encephalomyelitis will be finally recognised and a true path of hope opened up for us all. Amen
Lord we do not know the way forward 
yet we trust in You to guide us
We do not  have all the answers
Yet we trust in You to supply our need
We do not know how to get well
Yet we trust in You to lead us on a safe path.
Lord in all things we place our trust in You,
Amen.