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So close now....

…The very first edition ….but so much work had to be done on it. That’s now complete, just awaiting the second proof. 


I feel I have poured body, heart, soul  into this book; I really don’t think I could have given more. 

Helpless

Today has been very very difficult with both of us ill, one with the flu, the other with severe ME, plus knowing that it is only time before we both have flu. An awful thought. On days like this we are reminded vividly of our almost total isolation from everyone.
We are reminded of how few people seem to care, one way or another, especially locally. We are very aware of neighbours , who go to church, chose not to want to know or get involved.  It makes us more aware of the total vulnerability of our situation.
A strong reaction to days like this is a tearing sense of our own helplessness and poverty. On such days it feels as if  things cannot get any worse, except  actually they can, for today at least the continuing building work torment was not quite as extreme as other recent days.
Our reaction on days like this could be to fall into despair ,but we do not go there , because days like this also remind us of the love we have for each other. That is what is important. That is what is real. That is what lifts us and nurtures us and takes us forward beyond despair.

How to care for Someone with Severe ME

I have been busy on a labour of love for months on end - and now :

I just want to announce that my new book : "How to Care for Someone with Severe ME", will be out within days. It has been receiving good feedback.

Here is how Martin Walker, author of "Skewed" describes it :

"In the best tradition of the handbook, this book is both focused and eclectic, covering the very centre of the issue while straying afield to shut the doors on the periphery. It aims not just to articulate the terrible predicament of Linda, but to expose in Greg’s terms the ‘tissue of lies’ spread by psychiatrists and to suggest ways that a network can become a political body able to organise a new right to life for ME sufferers.

Greg Crowhurst’s prose is imbued with justified anger, for not only has Linda’s life and dreams been ruined by ME and a recalcitrant and mercenary medical profession, but his life and his dreams have also has been destroyed. The medical profession has a great deal to answer for as it reaches its corporate destination where every recognised illness has its diagnosis and its chemical or high tech cure.

If you want to know about the reality of ME, in all its aspects, if you want to understand the environment in which ME grows and its sufferers are persecuted, read this Handbook. Greg Crowhurst’s book is of immense value, it’s a holistic book, a total book which looks at ME from the focused pinpoint of the sufferer while rising above the immediate physical problem to reconnoitre the surrounding landscape. 

In following the book’s arguments no sufferer will be cured, no carer relieved of the medical or moral duty to care, but at least those sufferers who can campaign, those carers who do still hope and stand at their posts, will be able to engage with those who stand in their path and hopefully will not be victims of the roadside bombs and false obstructions engineered by the terrorists of obfuscation hiding in the medical and psychiatric professions."

The book will be made available for people with ME and carers to download for free from Stonebird. There will also be a printed copy, which would be useful to give to GPs and professionals : price £11.99.