This is Severe ME, by Merryn Crofts​


Thank you so much to Merryn for
permission to post her immensely powerful
description of what it like to have Severe ME .

Please, as Merryn says :
 "SPREAD AWARENESS AND REMEMBER ALL OF US AND ALL OF THOSE WHO HAVE LOST THEIR LIVES."


 "Having severe ME, is like being trapped in your own body every single day. There is no rest, you are bedbound all day every day.

 It snatches the most simple things away from you like being able to wash yourself, even in bed. Being cared for in every way possible. In terrible pain, from everything. Not being able to talk on the phone or have visitors, and feeling worse about saying no everytime someone asks again.

Months and months in hospital.

Severe infections. Breathing problems. Low immunity. Problems anywhere and everywhere in the body. Paralysis. Severe hypersensitivity. The list is endless, and if I was physically able to type I would carry on. Spread awareness and remember all of us and all of those who have lost their lives."

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